CRC/C/GC/9
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convention on the rights of persons with disabilities, in its article 4, paragraph 1 c,
emphasizes the importance of inclusion of this aspect stating that States parties undertake “to
take into account the protection and promotion of the human rights of persons with
disabilities in all policies and programmes” (A/AC.265/2006/4, annex II). It is also essential
that all programmes be adequately supplied with financial and human resources and equipped
with built-in monitoring mechanisms, for example, indicators allowing accurate outcome
measurements. Another factor that should not be overlooked is the importance of including
all children with disabilities in policies and programmes. Some States parties have initiated
excellent programmes, but failed to include all children with disabilities.
C. Data and statistics
19.
In order to fulfil their obligations, it is necessary for States parties to set up and
develop mechanisms for collecting data which are accurate, standardized and allow
disaggregation, and which reflect the actual situation of children with disabilities. The
importance of this issue is often overlooked and not viewed as a priority despite the fact that
it has an impact not only on the measures that need to be taken in terms of prevention but also
on the distribution of very valuable resources needed to fund programmes. One of the main
challenges in obtaining accurate statistics is the lack of a widely accepted clear definition for
disabilities. States parties are encouraged to establish an appropriate definition that
guarantees the inclusion of all children with disabilities so that children with disabilities may
benefit from the special protection and programmes developed for them. Extra efforts are
often needed to collect data on children with disabilities because they are often hidden by
their parents or others caring for the child.
D. Budget
20.
Allocation of budget: in the light of article 4 “…States parties shall undertake such
measures to the maximum extent of their available resources…”. Although the Convention
does not make a specific recommendation regarding the most appropriate percentage of the
State budget that should be dedicated to services and programmes for children, it does insist
that children should be a priority. The implementation of this right has been a concern to the
Committee since many States parties not only do not allocate sufficient resources but have
also reduced the budget allocated to children over the years. This trend has many serious
implications especially for children with disabilities who often rank quite low, or even not at
all, on priority lists. For example, if a State party is failing to allocate sufficient funds to
ensure compulsory and free quality education for all children, it will be unlikely to allocate
funds to train teachers for children with disabilities or to provide for the necessary teaching
aids and transportation for children with disabilities. Decentralization and privatization of
services are now means of economic reform. However, it should not be forgotten that it is the
State Party’s ultimate responsibility to oversee that adequate funds are allocated to children
with disabilities along with strict guidelines for service delivery. Resources allocated to
children with disabilities should be sufficient --and earmarked so that they are not used for
other purposes-- to cover all their needs, including programmes established for training
professionals working with children with disabilities such as teachers, physiotherapists and
policymakers; education campaigns; financial support for families; income maintenance;
social security; assistive devices; and related services. Furthermore, funding must also be
ensured for other programmes aimed at including children with disabilities into mainstream
education, inter alia by renovating schools to render them physically accessible to children
with disabilities.