month. The reason for the exorbitant cost of the treatment is that gaucher
falls in the category of rare diseases. As small number of people suffer from
rare diseases, pharmaceutical companies are unable to recover their research
and development costs over a large base of patients. It is for this reason that
these drugs are exorbitantly priced at a global level.
No Indian drug
company has developed a competing drug for this disease till date.
WITH DELHI GOVERNMENT'S
MONTH'S TREATMENT GIVEN
5.
FINANCIAL
ASSISTANCE,
ONE
The petitioner underwent his first treatment in August 2013 availing
of financial assistance from the Delhi Arogya Kosh, which provides
financial assistance to the extent of rupees five lakhs to needy eligible
patients.
Under the Scheme, the petitioner received a cheque of
Rs.4,80,000/- in favour of the Director, All India Institute of Medical
Sciences (AIIMS) and was able to receive the first treatment. However,
respondent No.2 has stated in its counter affidavit that the petitioner having
exhausted Rs.4,80,000/- can now be extended further financial assistance for
medical treatment only to the extent of Rs.20,000/-.
DURING THE PENDENCY OF PETITION, A HOSPITAL, A DRUG
COMPANY AND LAWYERS OF DELHI HIGH COURT VOLUNTARILY
CAME FORWARD TO ORGANISE SIX MONTH'S TREATMENT
6.
Since during the pendency of the present petition, petitioner required
urgent medical treatment, on 29th January, 2014 Medanta - The Medicity
Hospital, Gurgaon, Haryana offered one month's free treatment of enzyme
replacement to the petitioner. Subsequently, on the oral request of this
W.P.(C) 7279/2013
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