DESPITE MEETING OF HEALTH SECRETARIES OF CENTRAL AND
STATE GOVERNMENTS, NO SOLUTION COULD BE FOUND
9.
Prior to commencement of arguments, this Court gave an opportunity
to the Central and State Governments to see if the matter could be amicably
resolved. Consequently, vide order dated 12th February, 2014, the Secretary
(Health), Ministry of Health & Family Welfare and Secretary (Health),
Government of NCT of Delhi along with other Government officials were
directed to hold a meeting on 25th February, 2014. However, the meeting
was not very successful. In the meeting, it was decided that:
"(i) Following the directions of the Hon'ble Court and while
understanding the plights of the patients suffering from the
Lysosomal Storage Disorders [LSDs] and also examining the
matter from public health point of view, existing guidelines of
the available Schemes and the possibly of other further
repercussions, it has not been found possible to devise a viable
policy for financial assistance on recurring mode on a long
term basis for the entire life-time for the patients suffering from
LSDs.
(ii) It was further decided in this meeting that "The cases
may be examined by the States on Case to Case basis.
(iii) States would also be advised to examine viable means of
supporting these patients through funds being pooled for
available sources in the society
(iv) The serious reasoning arising out of the discussions may
thus be submitted to the Hon'ble Court."
(emphasis supplied)
10.
Accordingly, on 25th March, 2014, this Court commenced hearing
final arguments.
W.P.(C) 7279/2013
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