CRPD/C/GC/5
B.
Article 19, chapeau
18.
Article 19 reaffirms non-discrimination and recognition of the equal right of persons
with disabilities to live independently in the community. In order for the right to live
independently, with choices equal to others, and be included in the community to be
realized, States parties must take effective and appropriate measures to facilitate the full
enjoyment of the right and the full inclusion and participation of persons with disabilities in
the community.
19.
The article covers two concepts, which are only clearly mentioned in its heading: the
right to independent living and the right to be included in the community. Whereas the right
to independent living refers to an individual dimension, as a right to emancipate oneself
without being denied access and opportunities, the right to be included in the community
entails a social dimension, i.e., the positive right to develop inclusive environments. The
right as enshrined in article 19 covers both concepts.
20.
Article 19 explicitly refers to all persons with disabilities. Neither the full or partial
deprivation of any “degree” of legal capacity nor the level of support required may be
invoked to deny or limit the right to independence and independent living in the community
to persons with disabilities.
21.
When persons with disabilities are assessed as requiring a high level of personal
service, States parties often consider institutions as the only solution, especially when
personal services are considered to be “too costly” or the person with disabilities is
considered to be “unable” to live outside an institutional setting. Persons with intellectual
disabilities, especially those with complex communication requirements, among others, are
often assessed as being unable to live outside institutional settings. Such reasoning is
contrary to article 19, which extends the right to live independently and be included in the
community to all persons with disabilities, regardless of their level of intellectual capacity,
self-functioning or support requirements.
22.
All persons with disabilities should be free to choose to be active and belong to
cultures of their own choice, and they must have the same degree of choice and control over
their lives as other members of the community. Independent living is not compatible with
the promotion of a “predefined” individual lifestyle. Young persons with disabilities should
not be forced to live in settings designed for elderly persons with disabilities and vice versa.
23.
Persons with disabilities of all genders are rights holders and enjoy equal protection
under article 19. All appropriate measures should be taken to ensure the full development,
advancement and empowerment of women. Lesbian, gay, bisexual, transgender, queer and
intersex persons with disabilities must enjoy equal protection under article 19 and therefore
respect for their personal relationships. Furthermore, the right to live independently and be
included in the community encompasses the protection of persons with disabilities
belonging to any age group, ethnic group, scheduled caste or linguistic and/or religious
minority, as well as migrant, asylum seeking and refugee persons.
C.
Article 19 (a)
24.
To choose and decide how, where and with whom to live is the central idea of the
right to live independently and be included in the community. Individual choice, therefore,
is not limited to the place of residence but includes all aspects of a person’s living
arrangements: the daily schedule and routine as well as the way of life and lifestyle of a
person, covering the private and public spheres, every day and in the long term.
25.
Often, persons with disabilities cannot exercise choice because there is a lack of
options to choose from. This is the case, for instance, where informal support by the family
is the only option, where support is unavailable outside of institutions, where housing is
inaccessible or support is not provided in the community, and where support is provided
only within specified forms of residence such as group homes or institutions.
26.
Further, persons with disabilities might not be allowed to exercise their individual
choice owing to the lack of accessible information regarding the range of choices available
6